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Thursday, 29 June 2017 07:01 AM
Thank you for visiting my site. Here you can leave your comments.
Total Records: 141   Records Viewed Per Page: 20 [1] 2 3 ... 8
Name Comments
141) Anna  Female
Location:
Ireland
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64) AppleWebKit/537.36 (KHTML, like Gecko) Chrome/55.0.2883.87 Safari/537.36
Thursday, 2 February 2017 04:13 AM Host: 95-44-44-26-dynamic.agg2.dbn.cld-dbn.eircom.net Write a comment

I am so sorry for your loss!

Jeff's story moved me deeply, my eyes welling with tears and my heart with sympathy for you and tenderness for a young life lost!
...and deep indignation at human ignorance
140) Patrick Dirlam  Male
Location:
Arroyo Grande, CA
IP logged Mozilla/5.0 (Windows NT 10.0; Win64; x64) AppleWebKit/537.36 (KHTML, like Gecko) Chrome/54.0.2840.71 Safari/537.36
Thursday, 10 November 2016 09:07 AM IP: 162.251.190.86 Write a comment

Wow! Today is your 40th birthday Jeff. I wish you could be here for this milestone event. Your life was too short but in your 25 years, you influenced a lot of people and made a difference for the better in their lives! I know many people will never forget you and your contribution to their lives. You will never be famous but you will live on in the memories of those who knew you.

God bless you Jeff and I love you always and forever!

Dad
139) Judi Newton  Female
Location:
United States
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64) AppleWebKit/537.36 (KHTML, like Gecko) Chrome/42.0.2311.135 Safari/537.36
Monday, 4 May 2015 11:55 PM Host: 174-134-199-4.res.bhn.net Write a comment

Thank you for sharing your sons story with me and telling me about Wilson's disease and thank you for listening to me share about my nephew and DIPG.
138) Louise Le Clair  Female
Location:
NB Canada
IP logged Mozilla/5.0 (compatible; MSIE 10.0; Windows NT 6.2; Win64; x64; Trident/6.0)
Monday, 8 December 2014 04:19 PM Host: nwcsnbsc00w-047054080084.pppoe-dynamic.High-Speed.nb.bellali Write a comment

I am so sorry for your loss,my husband suffers also from wilsons disease since the age of 15,It is a terrible disease but with the help of medication he is living a almost normal life but with a slight tremor,hopefully you will find the strength to get through this terrible ordeal..
137) Patrick Dirlam  Male
Location:
Arroyo Grande, CA
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64; rv:30.0) Gecko/20100101 Firefox/30.0
Sunday, 29 June 2014 04:15 PM IP: 162.251.191.98 Write a comment

SPAMMERS BEWARE! I have had it with all of you and your ip address is now forwarded to your ISP! Your posts will never be seen on this guestbook so don't even waste your time. This is a memorial site in honor of my son -not somewhere to advertise shoes or your blog!
136) Patrick Dirlam  Male
Location:
Arroyo Grande, CA
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64; rv:28.0) Gecko/20100101 Firefox/28.0
Thursday, 24 April 2014 08:15 AM Host: 162-251-191-98.surfnetc.com Write a comment

It's been 12 years now Jeff and still feels like yesterday! I know you have, in some small way, helped many who visited this site either by the information it contains or by your story of strength and compassion against this horrible disease.

I love you son and hope you will be waiting for me to guide me to the glorious afterlife, whatever that may be!

Dad
135) Kelly Rosvold  Male
Location:
Kelowna, BC, Canada
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64) AppleWebKit/537.36 (KHTML, like Gecko) Chrome/30.0.1599.101 Safari/537.36
Thursday, 14 November 2013 04:29 PM IP: 207.102.139.1 Write a comment

I read some of your story and saw some of your pictures of your son. Thank you for sharing your story. My 25 year old daughter was diagnosed 2 weeks ago. The neurological damage is evident and she is in hospital getting Penicillamine/Zinc treatment. Your story scares me enough that I will question the doctors, again, about why Trientine isn't being used. So sorry about your son's death. Take care.
134) gerry  Male
Location:
nova scotia
IP logged Mozilla/5.0 (compatible; MSIE 10.0; Windows NT 6.1; WOW64; Trident/6.0)
Saturday, 5 October 2013 05:30 PM Host: dhcp-e0-69-95-da-23-85.cpe.xcountry.tv Write a comment

Hi my name is Gerry and My oldest daughter and I both have wilson's, we recently where diagnosed in the past four weeks with this disease , I have had severe symptoms for six years, and my daughter for two. I'm sure jeff was a great guy , sorry for your loss, all the best in the future, Thank you
133) Rebecca Thomasson 
Location:
United States
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64) AppleWebKit/537.36 (KHTML, like Gecko) Chrome/29.0.1547.62 Safari/537.36
Wednesday, 4 September 2013 07:46 AM IP: 69.27.135.86 Write a comment

Thanks for talking to me. You have suffered an overwhelming loss and are still helping people cope with their problems. God bless you.
132) FRAN 
Location:
nj
IP logged Mozilla/5.0 (compatible; MSIE 9.0; Windows NT 6.1; Trident/5.0)
Monday, 19 August 2013 09:01 AM IP: 209.212.1.150 Write a comment

:cool: a wonderful memorial site
in honor of Jeff
peace=comfort=love and joy to his dad and family
131) FRAN  Female
Location:
new jersey
IP logged Mozilla/5.0 (compatible; MSIE 9.0; Windows NT 6.1; Trident/5.0)
Monday, 19 August 2013 08:56 AM IP: 209.212.1.150 Write a comment

:-) THINKING OF YOU ALL ON THIS SPECIAL TRIP TO YOSEMITE
FOR YOU PATRICK--WHERE YOUR HEART WILL UNITE WITH JEFF\PEACE-COMFORT AND JOY TO YOU
LET THERE BE PEACE

GOD BLESS ALL
130) Maria  Female
Location:
Monroe, Wa
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 5.1; Trident/4.0; .NET CLR 1.1.4322; .NET CLR 2.0.50727; .NET CLR 3.0.4506.2152; .NET CLR 3.5.30729; .NET4.0C; InfoPath.3)
Wednesday, 24 April 2013 11:00 AM Host: 50-200-77-134-static.hfc.comcastbusiness.net Write a comment

Very Inspiring (:
129) Sanjay  Male
Location:
NY
IP logged Mozilla/5.0 (Macintosh; Intel Mac OS X 10.7; rv:19.0) Gecko/20100101 Firefox/19.0
Friday, 12 April 2013 10:54 AM Host: pool-173-63-242-210.nwrknj.fios.verizon.net Write a comment

I am very sorry for your loss...i hope your beloved son is in a better place now. Hopefully someday they will find a way to cure and prevent WD
128) Fran  Female
Location:
new jersey
IP logged Mozilla/4.0 WebTV/2.6 (compatible; MSIE 4.0)
Monday, 25 February 2013 03:34 AM Host: proxy-3252.bay.webtv.net Write a comment

saying hello to Jeff's dad
and keeping both in my heart-as Patrick has helped and been with my pain also
GOD bless you Patrick
Your care has been a great help
THANK YOU

Jeffs birthday has come and left--a new year-always in your heart
127) Rose  Female
IP logged Mozilla/5.0 (iPad; CPU OS 6_0 like Mac OS X) AppleWebKit/536.26 (KHTML, like Gecko) Version/6.0 Mobile/10A403 Safari/8536.25
Thursday, 1 November 2012 04:06 PM Host: mobile-166-137-208-046.mycingular.net Write a comment

Hi and Thank You so much for sharing everything! I am waiting for test results to confirm if my 13 year old son has WD. I've had the big issues with doctors and big ca ins also, thank you again, my strength has been wearing but you have helped replenish it! :heart:
126) linda pfister  Female
Location:
orangevale,ca
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 5.1; Trident/4.0; GTB7.4; .NET CLR 2.0.50727; eSobiSubscriber 2.0.4.16; .NET CLR 3.0.4506.2152; .NET CLR 3.5.30729)
Saturday, 27 October 2012 03:55 PM Host: c-98-208-96-61.hsd1.ca.comcast.net Write a comment

I know you are in heaven and are looking down at your family with love in your heart..your story made me cry, but know it is not in vain that you have left this world that filled you with the pain and suffering you had..your heavenly father knew it was time to call you home..I know this will help many people and so many were blessed to know you..i did not know you but was looking up this page..I pray for healing in your mom and dads life and others who loved you..and maybe they will make a page on facebook so many can talk..I am ill but doctors cannot seem to figure things out. Knowing this is what you went thru and know that you are missed i am sure by so many..they will see you again..running, laughing and in no pain..r.i.p. sincerly linda
125) Patrick Dirlam  Male
Location:
Arroyo Grande, CA
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64; rv:14.0) Gecko/20100101 Firefox/14.0.1
Sunday, 2 September 2012 10:55 AM Host: assigned-72-29-162-86.cicwireless.cust.digitalwest.net Write a comment

It's been 10 years son. It's hard to believe and hard to deal with but you've helped so many people over the years since you've been gone that your leaving us was not wasted. You've inspired many people with and without Wilson's Disease since the inception of this website and you will keep inspiring people as long as it exists!

I love you Jeff. I miss you tremendously. I hope to see you when my time comes!

Dad
124) FRAN  Female
Location:
new jersey
IP logged Mozilla/4.0 WebTV/2.6 (compatible; MSIE 4.0)
Thursday, 12 July 2012 01:26 AM Host: proxy-3241.bay.webtv.net Write a comment

:cool: hello Patrick
A geat way to show tribute to Jeff
and to thank you for all you support
and being there
Fran
YEP--me again, always
123) Elaine Riedy  Female
Location:
Rockland, Maine
IP logged Mozilla/5.0 (Windows NT 6.1; WOW64; rv:13.0) Gecko/20100101 Firefox/13.0.1
Wednesday, 4 July 2012 11:54 PM Host: cpe-74-78-177-204.twcny.res.rr.com Write a comment

My son Nick has WD and was diagnosed with it at age 13 1/2. He has cirrhosis of the liver. I wish that your son had been diagnosed early enough for him to continue his life for many more years! I hope that some day there will be a routine test for WD and that every child is screened. It sounds like his time on earth included some very happy times.
122) Heather Moore 
Location:
Kylertown PA
IP logged Mozilla/5.0 (compatible; MSIE 9.0; Windows NT 6.1; WOW64; Trident/5.0)
Monday, 14 May 2012 09:27 PM Host: pool-96-235-250-25.altnpa.east.verizon.net Write a comment

My step-son has Wilson's Disease. He has the rings in his eyes and is currently on medication. I know for sure he is taking Zinc but the doctor's say that the medication isn't working. He was just diagnosed at 16 years old. His blood platelets are too low for him to be put on the liver transplant list. He does have cirrosis of the liver. What can we do? thank you :confused:

Heather Moore Monday, 14 May 2012 09:29 PM
Host: pool-96-235-250-25.altnpa.east.verizon.net
oops, my email is: hm@mooreconstructionexcavation.com
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