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Total Records: 144   Records Viewed Per Page: 20 1 2 [3] 4 5 ... 8
Name Comments
104) JODIE  Female
Location:
New Zealand
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 5.1; Trident/4.0; FunWebProducts; GTB5; .NET CLR 1.1.4322; .NET CLR 2.0.50727; .NET CLR 3.0.4506.2152; .NET CLR 3.5.30729)
Monday, 3 January 2011 03:40 PM Host: 121-74-122-204.telstraclear.net Write a comment

:-( Im am sorry for your loss :( my 11 year old has this awful disease,it breaks my heart everyday and makes me feel sick with hurt.
103) Patrick Dirlam  Male
Location:
Arroyo Grande, CA
IP logged Mozilla/5.0 (Windows; U; Windows NT 6.1; en-US; rv:1.9.2.11) Gecko/20101012 Firefox/3.6.11
Thursday, 21 October 2010 11:47 AM Host: assigned-72-29-162-86.cicwireless.cust.digitalwest.net Write a comment

Thanks again to all who have signed this guestbook over the years. It's hard to believe it has already been 8 years!

Patrick
102) FRAN  Female
Location:
USA
IP logged Mozilla/4.0 WebTV/2.6 (compatible; MSIE 4.0)
Thursday, 15 July 2010 04:02 AM Host: proxy-3254.bay.webtv.net Write a comment

:rolleyes:
Hello Patrick--yes again
At this special time of year-I am wishing you a day of happy memories and great heart of having
Jeff in your heart and memories-
AND BEING THERE FOR ME ALSO
Fran :eek:
101) Arlene Pfeiffer  Female
Location:
Nipomo, CA
IP logged Mozilla/5.0 (Macintosh; U; Intel Mac OS X 10_5_8; en-us) AppleWebKit/531.21.8 (KHTML, like Gecko) Version/4.0.4 Safari/531.21.10
Wednesday, 17 February 2010 10:43 PM Host: 24-205-249-247.dhcp.gvrb.ca.charter.com Write a comment

Hello Patrick,
It was truly enlightening to meet you yesterday. I knew WD sounded familiar. I must have heard about it in one of my pathology classes. But, I must say that I learned more from you in an hour about a disease that i now realize is not uncommon. Thank you so much for your thoughtfulness in sharing with us. I hope we will continue to learn, and in turn , to teach, so that others will not suffer. We value your friendship. Nothing happens by chance.
Arlene and Margaret
100) Liliia  Female
Location:
Georgia
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; GTB6.3)
Wednesday, 9 December 2009 03:00 PM Host: c-68-47-120-100.hsd1.ga.comcast.net Write a comment

Hello! I am a senior in high school. I have to make a brochure on Wilson's disease. I was researching online and came across this website. I just want you to know that I apreciate all of the information you have provided on this website. It has been touching and very useful.
99) Julie Ness  Female
Location:
Colorado Springs, CO
IP logged Mozilla/5.0 (Windows; U; Windows NT 5.1; en-US) AppleWebKit/532.0 (KHTML, like Gecko) Chrome/3.0.195.21 Safari/532.0
Monday, 28 September 2009 08:04 AM Host: 71-221-96-181.clsp.qwest.net Write a comment

I am on the WD support group e-mail list. I just found the link to your site for your son. Thank you for putting this together. I have WD and I have never met anyone else that has the disease. Your site truly touched me.

Thanks again,
Jules
98) Marc Jurado  Male
Location:
California
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 5.1; Trident/4.0; Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1) ;  Embedded Web Browser from: http://bsalsa.com/; .NET CLR 2.0.50727; Seekmo 10.0.431.0; .NET CLR 3.5.30729)
Tuesday, 7 April 2009 10:11 PM Host: adsl-75-10-105-65.dsl.frs2ca.sbcglobal.net Write a comment

:lol: Hi Pat it's me again marc.
I just wanted to let you know I appreciate you updating the work on Jeffs Legacy. I often come here to see Jeff when I need help fighting my addiction. I do this because I know jeff and what he would tell me to do if he were here. I think and the first thought comes to mind is "Don't be stupid!" Now that's a friend. :D
97) Fran  Female
IP logged Mozilla/4.0 WebTV/2.6 (compatible; MSIE 4.0)
Tuesday, 10 March 2009 04:41 PM Host: proxy-3244.bay.webtv.net Write a comment

Patrick
I am so happy for the joy that filled you heart-when you found Jeff's best friend after all these years and I know he realizes the importances also, and how his son will make you feel
It's like a light, shining on you
with a message from Jeff, like Jeff never left completely

GOD BLESS YOU ALL AND YOU PATRICK
96) Terri Wong  Female
Location:
Clovis, Ca.
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; YPC 3.0.3; FunWebProducts; GTB5; .NET CLR 1.1.4322; .NET CLR 2.0.50727; IEMB3; IEMB3; yplus 5.1.04b)
Sunday, 8 March 2009 04:34 PM Host: adsl-75-10-126-124.dsl.frs2ca.sbcglobal.net Write a comment

I remember that smiling little boy from 1984. We had just moved next door to Pat and Jeff,and he came up and introduced himself . He andmy son Marcus became fast friends, they were the same age, and remained so for many years. The last time I saw him was in 1998 working at the casino. The world is a sadder place for his loss.
95) Marc Jurado  Male
Location:
Clovis Ca
IP logged Mozilla/4.0 (compatible; MSIE 8.0; Windows NT 5.1; Trident/4.0; Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1) ;  Embedded Web Browser from: http://bsalsa.com/; .NET CLR 2.0.50727; Seekmo 10.0.431.0; .NET CLR 3.5.30729)
Sunday, 8 March 2009 02:01 PM Host: adsl-75-10-126-124.dsl.frs2ca.sbcglobal.net Write a comment

It's hard to speak now knowing this, it is the first time i've heard anything. I wish I knew, Jeff and I stopped talking back in 1996. He is and always will be my best friend. I remember all the pictures of his early years, and how we picked on Danny. Jeff is a great beiing, more spiritual than physical. This is his time of release, to soar amongst the stars in peace. I'm happy that he's found his place, forever lasting eternal grace.
Until we meet again...
Marcus Jurado
94) Valerie  Female
Location:
Paris, France
IP logged Mozilla/5.0 (Windows; U; Windows NT 6.0; fr; rv:1.9.0.6) Gecko/2009011913 Firefox/3.0.6
Saturday, 7 March 2009 01:58 AM Host: APuteaux-151-1-36-117.w82-120.abo.wanadoo.fr Write a comment

:wah: Pat, this was my first reaction : crying out for Jeff and you, and being shot down by the blend of pain and love, as strong as they could be, showing up on these pages. You suffered so much from the misindications you had. I have no words.
I do love the pictures, particularly the one in the "tube" and the one at the table in Pismo, California. It is what I would have liked to have. At least you had this. And you are generous enough to share it with us. I put the picture of you and Jeff on my laptop screen, tell me if you mind, I will then take it out. I love the thoughts and writings of Jeff. Why shouldn't you publish Jeff's bits as some Internet manuscript? It would be great.

All the best to you Patrick.
93) Rose  Female
Location:
Melbourne, Australia
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1)
Friday, 9 January 2009 01:30 PM Host: c114-77-113-74.chirn2.vic.optusnet.com.au Write a comment

Thanks for sharing Jeff's legacy Patrick - He has touched all our hearts. I read this when Lauren was first diagnosed in Nov 07 and I cried.
Jeff shines through you with all the help you give others regarding this disease

God Bless You and Your Family x

hugs
Rose
x
92) Fran  Female
Location:
Pennsylvana
IP logged Mozilla/4.0 WebTV/2.6 (compatible; MSIE 4.0)
Tuesday, 6 January 2009 04:00 AM Host: proxy-3268.bay.webtv.net Write a comment

A HAPPY NEW YEARS TO PATRICK AND HIS FAMILY
GOD IS ALWAYS BY YOUR SIDE

AND YES, IT IS ME AGAIN
91) Melinda  Female
Location:
South Australia
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; InfoPath.1)
Friday, 26 December 2008 02:51 AM Host: CPE-124-189-226-167.nsw.bigpond.net.au Write a comment

Hi,i read this site a while ago and it touched and scared me at the same time as i have a sister with severe neuro wd.
but it is because of Jeff and Patrick that i am now more vigilant with her drs. especially when she is in hospital.
Patrick you have helped me more than you will ever know.
Thanks, Melinda xx
90) Rajesh  Male
Location:
New Delhi,India.
IP logged Mozilla/4.0 (compatible; MSIE 6.0; Windows 98)
Wednesday, 19 November 2008 09:49 PM IP: 125.63.100.14 Write a comment

Hi Patrick,

I was very moved going through Jeff's legacy and could indentify with your pain and helplessness since I went through similar experience.I lost my daughter to WD when she was 13 years old,and much through the negligence and ignorance of the doctor. If it helps;be confident in the knowledge that they have progressed to a better world and are free from the bondage and sufferings of this world and wait for us at the gates of heaven to live together forever in happiness.
May God bless you & your family.

Rajesh.
89) Michael Patrick Dirlam  Male
Location:
Orion, Illinois
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 6.0; SLCC1; .NET CLR 2.0.50727; Media Center PC 5.0; .NET CLR 3.0.04506)
Sunday, 2 November 2008 05:55 PM Host: 12-207-96-213.client.mchsi.com Write a comment

Uncle Pat,

I want to tell you how sorry I am that I was not there with you all through this. I never knew this site was out there, I guess that's what happens when we don't keep in touch as much as we should. I loved Jeff more than anyone will ever know. I never knew how bad it was at the end. I never understood what horrible pain Jeff and all of you were going through. Dad has been asking me to get tested every since this happened but I am not a person that goes to the doctor for anything, I promise you, I will get tested. If not for me, for the chance that I could be passing something on to my children. I would really like you to finish the book, I think it could benefit so many people that have to face this disease. You are a great man, and a wonderful father! I know how much he meant to you and how much you meant to him. I love and miss you all, I would like to get back in touch with everyone. Please write back some time.
Your nephew Mike
88) Christina (Harold) Behar  Female
Location:
Missoula, MT
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; FunWebProducts; .NET CLR 2.0.50727; .NET CLR 1.1.4322; InfoPath.2)
Friday, 10 October 2008 07:57 PM Host: host-69-146-169-41.msl-mt.client.bresnan.net Write a comment

I am so sorry to hear that Jeff passed away. I dated him in High School. The last time we talked was in I believe 1997. He still lived with you in Clovis. He also gave me a kitten way back, that I named Tweekers. He was orange and white with really long whiskers. I can not believe Jeff is gone. He was such a loving and caring guy, he is greatly missed.
87) Shirley  Female
Location:
Yorba Linda, CA
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 6.0; FunWebProducts; Mozilla/4.0 (compatible; MSIE 6.0; Windows NT 5.1; SV1) ; SLCC1; .NET CLR 2.0.50727; Media Center PC 5.0; .NET CLR 3.0.04506; Tablet PC 2.0)
Tuesday, 30 September 2008 11:19 PM Host: m500e36d0.tmodns.net Write a comment

Thank you for sharing Jeff's story. My son is beginning the WD journey himself and I feel how painful this was for you. You were blessed with such a wonderful son.
86) Chris Pageant  Male
Location:
Minneapolis
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; .NET CLR 1.1.4322; .NET CLR 2.0.50727)
Monday, 22 September 2008 09:46 AM Host: mail2.garlandsinc.com Write a comment

I stumbled accross this site and I am very touched by your story. It is obvious Jeff has a very loving family and I'm sure he can rest in peace until you see him again. God Bless.
85) FRAN  Female
Location:
philadelphia
IP logged Mozilla/4.0 (compatible; MSIE 7.0; AOL 9.0; Windows NT 5.1; FunWebProducts)
Wednesday, 27 August 2008 03:10 AM Host: cache-mtc-ad11.proxy.aol.com Write a comment

:rolleyes: :rolleyes:
thank you again for the pleasure of letting me share this page in jeff's memory and honor it is most important-as i have experience similar and keep you
always in heart from all yoru help-strength-courage and being a friend
i know the ache the heart feels and also know the love and comfort from jeff's heart for your being his dad and there for him-always
God bless you always
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