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Total Records: 144   Records Viewed Per Page: 20 1 2 3 [4] 5 6 ... 8
Name Comments
84) Richard Sollami  Male
Location:
San Diego, Ca
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1; MSDigitalLocker;  Embedded Web Browser from: http://bsalsa.com/; .NET CLR 1.1.4322; .NET CLR 2.0.50727)
Thursday, 14 August 2008 09:13 AM Host: ip72-207-37-180.sd.sd.cox.net Write a comment

Why is'nt assisted suicide an option for the worst cases? This site makes this case in my opinion. I am in the process of getting diagnosed with this and I am not encouraged after reading this site.
Any other opinions?
83) Carol  Female
Location:
Ireland
IP logged Mozilla/4.0 (compatible; MSIE 6.0; AOL 9.0; Windows NT 5.1; SV1; .NET CLR 1.1.4322)
Monday, 21 April 2008 04:02 AM Host: cache-los-aa07.proxy.aol.com Write a comment

Thank you for this site Patrick. Jeff's Legacy has touched the hearts of people throughout the world. Thank you for your strength and courage in continuing to help others. Toward a better understanding of this terrible disease. Toward a better future. I know he is watching over you.
Carol.
82) Susan Kuiper  Female
Location:
Australia
IP logged Mozilla/5.0 (Windows; U; Windows NT 5.0; en-US; rv:1.8.0.12) Gecko/20070508 Firefox/1.5.0.12
Tuesday, 8 April 2008 05:40 PM Host: 123-2-170-250.static.dsl.dodo.com.au Write a comment

My deepest sympathies for your loss. After reading your journal I cried.
I too have WD, and went from hepatic to neurolgical WD. I live in Australia, and yet it was all the wonderful Doctor's the U.S.A. has, that ended up saving my life. I am now coming up for my 13th year post neurological WD. I also have a younger brother who has WD, he almost died because of non complience of his meds. Thankfully he pulled through.
Thank you for sharing your very sad but touching story.
Once again my deepest sympathies.
Susan Kuiper
81) Fran  Female
Location:
Pennsylvania
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:53 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 2/5/2008
:rolleyes: Patrick-and Linda
I wish I had the pleasure of knowing Jeff personally. I do feel close to him now, meeting his Dad and Linda and having them as honest and kind caring friends to me-even though they had a bad time-they thought of me always with comfort, guidance, and love through my time with my daughter Dawn, who also had WD
GOD BLESS YOU BOTH
and Jeff will always be near.

His baby pictures are most precious.
HIS SIMLE-FOREVER
80) Julie  Female
Location:
Colorado Springs
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:46 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 1/21/2008

Thank you for sharing this touching story of your son. I am a 36 year-old patient with Wilson's and some other medical issues. I have yet to meet another Wilson's patient face-to-face. For years I was told that it was "all in my head." I am just sick and tired of being sick and tired. Thank you for sharing your story, it did my heart well.
79) Jan Culver  Female
Location:
NV
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:43 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 11/12/2007

I saw your web page, it broke my heart. I have Wilson's Disease, was diagnosed at 19 in 1972. They knew so little then so I have a hard time understanding how after all this time Jeff did not make it. Knowing what he went through and what your family went through I can only guess that he was a special, brave and loving young man. God bless you for the sharing such a special person.
78) Fran  Female
Location:
Pennsylvania
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:39 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 11/12/2007

:cool: Hello
At this time of the year with the 2 big HOLIDAYS may you have much happiness and great memories within your heart and for your family.
Hugs
Fran
77) Uncle Bud  Male
Location:
Pacifica, CA
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:36 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 10/10/2007

I am deeply moved by this website honoring Jeff. He truly was a wonderful, cheerful person. You have done a remarkable presentation. My heart goes out to you, as always.
76) Fran  Female
Location:
Pennsylvania
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:34 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 8/2/2007

I am honored and glad to be able to view this wonderful site of your son Jeff! Two hearts makes one of a kind and togetherness always. God Bless you Patrick. Forever in your heart is Jeff. You truly shared your lives and happiness and the father-son bond is always in your memories and heart!

Fran ;-)
75) George Feldmann  Male
Location:
Winnepeg, MB
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:31 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 7/27/2007

Excellent site! Good job! Thanks for all your effort in putting this site back on.
74) Devinder Singh  Male
Location:
Punjab, India
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:29 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 5/5/2007

Patrick the way you have fathered Jeff no body can do. You are a source of inspiration and friend of all.
73) verapetruta2005  Female
Location:
romania
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:28 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 4/16/2005

Heloo to everybody
72) Joann Kaden  Female
Location:
Bishop, CA
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:26 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 4/11/2007

Thank you for sending the link to me Pat. I've gone through almost everything here, sometimes with smiles and sometimes with tears. Jeff was such a beautiful spirit throughout all his short life. It's beyond understanding why he had to suffer this illness with all it's terrible symptoms. He met it bravely and I know he believed he would overcome it right up to the end because he was never one to give up in the face of adversity. Ignorance caused his death...ignorance and almost a criminal lack of caring from some medical people. A bright light went out when Jeff drew his last breath and the world lost a wonderful young man. I will always miss him, just as I will always love him.
Jeff's loving grandmother,
Joann
71) Ars  Male
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:21 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 6/26/2005

Great site! Well done and informative. Keep up the good work.
70) Sue Noe 99  Female
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:19 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 6/24/2005

Thanks for nice site! Best regards!
69) Brittney  Female
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:18 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 6/24/2005

Today is the big day! I hope the walk is even more successful then last years. Our prayers are always with you.
68) Sabrina  Female
Location:
russia
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:15 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 6/4/2005

very intersting site, thank you
67) Sab  Female
Location:
omsk
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:13 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 5/25/2005

I will visit this site every day, cos I love this resource so much!
66) Joe  Male
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:11 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 5/5/2005

This site rule the world! Keep fighting
65) Bronwyn Waltrip  Female
Location:
madera
IP logged Mozilla/4.0 (compatible; MSIE 7.0; Windows NT 5.1)
Tuesday, 18 March 2008 01:10 PM Host: 72-173-39-23.cust.wildblue.net Write a comment

Originally posted 3/9/2005

I was missing Jeff and did a search and came across this site. Jeff was a dear friend and will be greatly missed by all. He always put a smile on the face of anyone who met him. We had many great times together and I will miss him dearly. You have done a great tribute to Jeff with this website!
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